Nathan did very well on the low-flow oxygen system and they had him down under a liter in just a few days. That meant that we were very, very close to coming home! The biggest decision we faced at this point was how we were going to feed Nathan once we got home.
Almost all babies are born with a very strong, natural urge to suck. It is known as the sucking reflex. A reflex is a movement or reaction that is performed involuntarily or automatically in response to a stimulus. In other words, you do it without needing to think about it. For newborns, the sucking reflex is initiated when something (finger, pacifier, nipple) touches the roof of the their mouth. Around 2 or 3 months, the sucking reflex fades and the baby's ability to suck becomes a conscious effort rather than a reflex.
Since Nathan spent 10 weeks on the ventilator, he missed out on the opportunity to develop his sucking reflex into a conscious effort. Since he never developed the skill while sucking was a reflex, he never learned to eat. So all of his feedings in the NICU were done through a nasal-gastric (NG) feeding tube. It ran up his nose and down his throat and into his tummy.
The big question we faced now as Nathan was getting ready to come home was if he would come home with the NG-Tube or if he would have a Gastrostomy Tube (G-Tube) placed. The G-Tube is surgically placed directly through the abdomen into the stomach.
Nathan's NICU team consulted with Dr. Scaife, the surgeon who had performed Nathan's hernia repair surgery, to see what he recommended as a course of action. Dr. Scaife decided that it would be in Nathan's best interest to wait a few months for a G-Tube. Since Nathan's body was still small and he had already been through so many surgeries (7 if you're counting at home), the doctor wanted to give Nathan's body a chance to rest, recover, and get stronger.
So that meant that Nathan would be coming home with an NG tube!
The Family
Welcome to our blog!
We've decided to start at the beginning and work our way forward. You'll have to check back often as we chronicle the last 2+ years.
Thank you to all those who comment. We appreciate knowing you enjoy our blog.
Also, we want to say thank you to all those who have recently started following our blog. We hope you find it informative and enjoyable.
We also realize that some of you may wish to contact us. So we have created a special email account for you to do that. Contact us at nathansfamilyblog@gmail.com.
Thursday, February 25, 2010
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Were you excited to have him home? I'm sure you guys were nervous to learn all these new things. Or maybe you were just excited to get him home and willing to do whatever it took to get him home. Learning all these new things would just make you more knowledgeable. Dumb questions I'm sure, I was just thinking of how maybe I would cope. I know that when I have dealt with some of my kids in the hospital it is day by day and you do what they tell you, you need to do to help you baby. Needless to say, I'm anticipating each entry your writing here....It's so neat to have you take time and go back to tell the story. it's neat to hear this after seeing you guys struggle for so long with this. Thank you for sharing :)
ReplyDeleteSEVEN! Wow. I can't even imagine. Poor little thing!
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